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Tagged with: Access to Orphan Medicines

ABPI Biosimilars Brexit Budget Cancer Cancer Drugs Fund CCGs Clinical Trials Consultation DH DHSC EMA EU European Commission france Funding Generics Germany Government Healthcare HTA Innovation Ireland MAP Marketing Authorisation Matt Hancock MHRA Newsletter NHS NHSE NHS England NHS Improvement NICE Orphan Parliament PPRS Pricing Rare Diseases Regulations Reimbursement Report Research Scotland Sustainability and Transformation Plans USA

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MAP’s research cited in APPG evidence sessions

MAP’s research has been cited by members of industry giving evidence to the APPG on Access to Medicines and Medical … read more »

Published on 2. July 2019 in News, News UK


MAP referenced at APPG for Life Sciences

MAP BioPharma’s report Access to Orphan Medicines: A Case for Change was reference at last week’s APPG for Life Sciences … read more »

Published on 22. May 2019 in News, News UK


MAP hosts Parliamentary event on access to rare disease medicines

Last week MAP BioPharma welcomed leading stakeholders to join representatives from companies from the Access to Orphan Medicines Steering Group* … read more »

Published on 9. May 2019 in News, News UK


Parliament debates NICE appraisals of rare disease treatments

Last Thursday MPs debated a motion that this House believes that NICE appraisal processes do not properly address the medical … read more »

Published on 26. March 2019 in News, News UK


Changes to the procedure for accessing the AIFA 5% fund

MAP’s partner in Italy, Regulatory Pharma Net, has communicated that the AIFA have made changes to the procedure for accessing the … read more »

Published on 6. March 2019 in News Italy


Report from MAP BioPharma on access to orphan medicines

MAP BioPharma (MAP) has published a report on access to orphan medicines in England. The report, Access to Orphan Medicines: … read more »

Published on 19. February 2019 in News, News UK


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